the eye of the hurricane
Riding out the hurricane of autism can be scary, indeed.
Living with Luke’s autism has been like riding out a category 5 hurricane, the fiercest of them all. The energy he unleashed during one of his tantrums was the fuel for building the massive hurricane. Heavy metal chelators and a restrictive diet formed the thankful eye of the storm, when Luke was calm and happy, and all was right with the world. The return of the heavy metals after the chelators were stopped formed the tail end of the hurricane, spawning tornadoes in its wake.
Luke’s behavior became so out-of-control that, at one time, an institution was mentioned as being the only feasible placement for him, especially when I would no longer be around to care for him. It took detoxing him several more times for heavy metals and keeping him on a maintenance dose of zeolite clinoptilolite, which he will take for his lifetime, along with a dairy-free, gluten-free, sugar-free diet to get his behavior back under control, enabling him to live a typical life.
As some of you may be aware, Luke is now a young adult, living independently in an apartment by himself in Orlando, Florida. He is now under siege by a real hurricane in a few days, as Orlando, as of this writing, is in the direct path of hurricane Elsa, which is currently a category 1 hurricane. https://weather.com/storms/hurricane/news/2021-07-01-tropical-storm-hurricane-elsa-tracker
The mama in me wants to rush to Orlando and rescue Luke from this hurricane. But Luke wants to ride the storm out himself, assuring me that he will be okay. Over the phone (which, by the way, is something I thought would never happen when he was younger, as he was completely non-verbal) we went over the checklist for hurricane preparation: plenty of bottled water, food that won’t spoil if the power goes out, candles, lighter, flashlight, batteries.
Luke is ready to ride out the hurricane.
The thing is, Luke has been riding out the hurricane of autism his entire life, so he is used to the chaos and uncertainty. Yes, this is a real hurricane, with the potential for damaging winds and storm surge, but Luke is doing everything needed to stay safe. And he wants to stand on his own two feet, being the independent and free adult he has become. I have to respect his wishes. And I couldn’t be prouder of the kid!
To all of you riding out your own hurricane of autism: My best advice to you is to find a good support system, whether it be family, friends or a trusted support group. Start getting services for your child, such as ABA, speech and occupational therapy, as soon as you can, as early intervention is crucial. And consider looking into alternative treatments under the supervision of a qualified healthcare practitioner, such as heavy metals detoxification, treatment of leaky gut and changing the diet.
And hang in there and try to stay positive, though I know how hard it can be sometimes. The hurricane of autism can become a welcoming breeze of independence into adulthood if we become proactive for our autistic kids!
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