What defines autism recovery? I recently spoke to a group of autism moms, and one of the moms asked what defines autism recovery. How would the light at that proverbial end of the tunnel look for our child?
Typical speech? Lots of friends amongst their peers? Living independently? Becoming a rocket scientist?
What defines autism recovery, anyway? Autism recovery is defined as no longer meeting the diagnostic criteria for ASD (autism spectrum disorder). Researchers are finding, though, that many children who no longer fit the criteria for an autism diagnosis continue to have residual problems such as language and social interaction difficulties. https://www.sciencedaily.com/releases/2019/03/190312075923.htm
So are these children who continue to need support for speech and social interaction considered “recovered” from autism?
Most of the moms I spoke to agreed that what defines autism recovery for them would be for their child to be able to live independently as an adult, be able to hold down a job, manage their money and be able to communicate. One mom, though, admitted that because of her high expectations, nothing short of her child becoming an airline pilot or rocket scientist would qualify as him being recovered from autism. Another mom pointed out to this mom that most typical kids don’t grow up to become airline pilots or rocket scientists, so that would be a lofty indication of autism recovery.
As many of you may know by now, my son Luke started off in life as being nonverbal. He was considered as being severely autistic at one point in his life, with talks of him being placed in an institution. At the age of seven, I finally realized what was really going on with him, and took him to an environmental doctor. That doctor led us towards that mystical light at the end of the autism tunnel.
“The ability to live independently is considered recovery from autism,” that doctor told me.
I was giddy with hope that my son could ever live without daily intervention, the thought of what would happen to him after I’m gone keeping me awake at night. I could only nod my head in effusive agreement, dreaming of the day that would ever happen.
After treatment for heavy metals and leaky gut, Luke ended up graduating from college with a bachelor’s degree, moving into his own apartment and finding and keeping a job. He manages his money and pays his own bills. He communicates very well, and interacts socially. He is very quiet for the most part though, not contributing much to the conversation around him unless it’s something he’s interested in. He has his quirks, which only makes him the unique, adorable kid whom I cherish so much.
So, in my mind, Luke is what defines autism recovery. He may not be perfect or become a rocket scientist, but he’s independent, as well as a wonderful member of society. And that’s what defines autism recovery for me.
How about you? What defines autism recovery for you and your autistic child?
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